Tag Archives: fibromayalgia

A Day of Prayer for Me – Mother in Surgery

vintage girl and dog praying
I am saying my Prayers for my Mother.

This may turn some people off, but I really don’t care if it does… I am Catholic and I believe in the power of prayer. I am not going to tweet out giveaways or my reviews today, I am spending my time in prayer for my Mothers surgery today.

Mom, Dad and All Mom's Sweet Friends at American Legion, Sept 2012 Picture taken by Mariah
Mom is so loved, when we went to the Local American Legion, I had to take a picture of her, Dad and Mom’s Admirers.

I did however choose to write about this today, my Mother is quite frail right now at 71 lbs at last weighing in. She can hardly eat, she has chronic pain, chronic fatigue and an autoimmune disease, along with a hospital borne infection (she got infected a few years back in surgery in her back and the infection lingers on as it is resistant to antibiotics). The infection  had spread to her bones, as they discovered in her Month in the hospital, late last year into Mid January. The infection had not been responding to the antibiotics that could help control the infection (not cure it).

Now comes February and she is back in the hospital, the pain in her back was serious enough to bring her in. They found that some vertebrae above the ones worked on years ago, above the pins and fusions and by the infection, were gone and now they too need surgery.

A picture of my Mother, pre drastic weight loss and a few years back.
My Mother in better times, on prednisone in the picture, and a few years back.

As they decided whether or not to operate, they discovered that the infection was possibly encapsulated since the infection was not responding. So my Mother and Father were told of the concerns of doing surgery while she is so frail, but they decided to go through with it and hinted to Mom (she caught the hint) that she needs to be in good spirits and may have to fight to survive this.

They are operating today and I called my father (we are snowed in at home here) who, thank God has a friend who is in the waiting room with Dad keeping him company. I called at just the right time as they had just stopped in and said that she is doing well, the surgery is going well, however it will be quite some time yet before the surgery is through. They are attempting to scrape the infection away and out of her, I pray they do that exact with a steady hand as I pray it doesn’t spread the infection. Mom wasn’t sure what exactly they would do pins or fusion or cadaver vertebrae or what, so that frightened her somewhat, not knowing what is going to be done.

Mom's Superhero's Not All Wear Capes
This is my Mother, a true Superhero, without a cape. 6 wonderful kids (well with me, it’s debatable) and all brought up well with the Superhero, my Mother.

I am praying for exacting steady hands of the surgeons and wise choices for my Mother back. I am praying today for my Mother to continue being the inspiration that she is and continue to fight her way to good recovery and health.

Me, Mariah forming a Heart with my hands fingers, red nail polish on with white stamped hearts
Me forming the shape of a Heart to send to all my lovely readers… love you all!

Please my friends of all faiths, say a prayer or if you don’t believe in prayer, send good thoughts and love out for my Mother, Thank you!

And one more thing, please don’t be shy… sign the get well car for my Mother, even if you don’t know her or me well! Mom can use some serious cheering up to help give her strength and keep the faith as she heals… please go sign now and feel free to put up a fun or adorable loving picture with your signing well wishes for her! CLICK HERE

Mother going back into the hospital – just received a phone call from Dad, letting me know

 

A picture of my Mother, pre drastic weight loss and a few years back.
My Mother in better times, on prednisone in the picture, and a few years back.

Hi friends, my beautiful sweet and courageous Mother has been very sick for quite some time. Like me she suffers from an Autoimmune Disease which has been complicated by surgeries on her back, one of which caused a Hospital Contracted Infection which cannot be cured and I suspect the site of the infection is flared again.

Dad said that Mom’s back is in serious pain again, as you may recall I wrote about her and Joan in a post on Joan and Mariah’s Reviews a while back and my Mother ended up in the hospital for about a Month as a result of her infection and other complications.

My Mother is down to 71 pounds at last weigh in, that we have talked about together as she is having serious problems eating too. I am very very worried about her and know that I will be spending some time on the phone trying to cheer her up and hopefully I can squeeze enough out the budget for me to travel to the hospital to go pay her a visit or two.

A Sample of my Mothers Artwork, she paints in oils, this is her Calligraphy, her own poem and drawing which is painted in watercolors.
A Sample of my Mothers Artwork, she paints in oils, this is her Calligraphy, her own poem and drawing which is painted in watercolors.

Please my friends, family and readers, send out positive thoughts to and prayers for this wonderful lady (a talented Artist, Mother of 6 and all around loving caring and brave woman). My Mother’s Name is Nancy… I appreciate your thoughts and prayers and I truly believe in the power that is held in the thoughts and prayers sent out.

Thank you, love and hugs,

Mariah

Family Book, writing my portion…. about my thoughts on the subject

   Last year I received a big Manila envelope from my Mother, what was in it? The typical stuff, that is typical for my Mothers mailings, it’s always a smörgåsbord of odds and ends in her mailings. I received copies of some of her recipe cards, some of them favorites of mine and some she newly discovered… some copies of articles concerning Systemic Lupus, Fibromyalgia and Cervical Vertebra newest surgical info and so on. What was so unusual about this envelope was  that it also contained a questionnaire for a Family Book that she wants to make.
   I struggled to think of a single thing to put down in this book answering all the questions, strange how I am finding this a struggle. I struggled long enough and time went by… the list of questions plagued me for a while… of course during a move this Spring (in which the original paperwork got lost, still packed up in a box somewhere) I thought of some perfectly fun and funny answers for this, but of course it was during a move and no notes were taken. Well, Mother decided that half of the children replied and she would place in a brief statement for us other 3 kids and print up the book. Well here it is months and months later, not only has it not been printed, but now we must answer the questions in a week! *sigh*
   Fascinating how the mind works… when not under a time limit I could think of things that would be perfect but they are all gone in a Fibro Fog of sorts, flying away with the winds of time and lack of brain power… the brain is already overwhelmed trying to take care of my pain levels that have been through the roof as of late.
  I can go through my memories of my childhood, early adulthood and Marriage… the questions of favorite childhood memories sad to say are a bundle of little pieces, that gives me a headache as I try and push them to the surface. The problem is that one memory is not a favorite over the others and why am I taking this so seriously? Well, I regretably haven’t had children of my own, (perhaps do to my Systemic Lupus) I won’t be much of a story or memory to others when I pass on. I want my words to have meaning, to show my sense of humor, some of what made me the me that I am today and to have some words of wisdom in them… evidently its too much to ask of this brain of mine in exhaustive pain? What am I to do?
   I will not plague generations of the family with the struggles of  being poor & disabled with crippling pain, the struggles of not having a home to call your own but dealing with slum lords and messes of others at your front door, the struggles of barely getting by and the heartache of not taking a trip to see relatives who live far away etc etc. But I would really love it if some questions were asked about how to get by, or what advice we’d give others on getting by. I think I have been given, by my Parental Units (yes I am showing my age… yay Coneheads!), the knowledge and tools to get me through more successfully then others manage on so little. I sew (thus my blog: Sew What, Darn it) and craft, make my own soaps (laundry and dishwasher and leftover soaps get collected to make new soaps), I make my own many things (mostly out of old clothing, buttons, beads from friends jewelry that had fallen apart and they were going to toss etc etc) and so people generally think I am better off then I am. But they never see my mess of an Apartment as these things I do (and rarely do them)… it take up both energy, of which I have in rare supply (just thinking and talking on some days takes up what energies I do have) and takes up room. The lack of energy leads to lack of energy for much more then dinner and dishes and lack of room all add up to this messy little apartment. Alas I diverge… forgive me, the powers of ramblings are after all my biggest strength… or is it that ADD? 😛 
  Well my ramblings are more personal today then ever, I feel I am writing to my diary… it is a big wide world out there and this blog is but a tiny little piece of dust, and so I have hit the “publish post” button and placed my dust particle in the winds of the Internet… where it lands, it’s hard to say…but I know it’s there, with my ramblings

Well, this will probably be edited and polished up in the furture… I am not focusing well at all today and worse yet, I am in a hurry.

Love, hugs & kisses